When things fall apart

 I am struck by this experience of accompanying someone in a dire prognosis. No doubt, for each person or couple the experience is unique to them. In my case, my husband has made no bucket lists but rather sees each new day as an opportunity to reach for a cure to his condition.

It's incredibly frustrating to both of us that a potential cure is not allowed in this country and we may in fact soon have to board a plane to purchase the no-harm medication elsewhere. I am no conspiracy theorist but there's no doubt that there is profit at the heart of such decisions to refuse access to potentially lifesaving medications currently inexpensive.

 I have been forced to look inside my own mind for a way forward, for a way to approach each day, navigating his approach and my own, one more centred in the facts before me. I have seen this positive thinking bear fruit and I have seen it become a failed harvest. 

I am reminded at just this very moment of the title of Pema Chodron's book, 'When Things Fall Apart: Heart Advice for Difficult Times'. I must order this book today for it seems timely.

There is no question that it is indeed a difficult time. I dreamt last night of being in war, of having to navigate around the enemy to be safe and I woke, needing to escape the dream. I lay there, aware of the reason for the dream. I was in a deeply vulnerable place.

I think when you are in a long marriage, especially when it began when you were still in your teens, the thought of losing that mate is so confronting, hiding in denial, or anger, or disbelief, seems far better an option than sitting in the facts of the matter. I have used this strategy for quite some time.

Who knows why or when one begins to let that outer shell of security go, but it has gone. My mind seems to be stuck in the moment. Will this be the last anniversary, will this be the last year. Every transaction, every 'good morning', every decision seems so poignant.

I once heard Blanche d'Apulget talk about her last year with Bob Hawke (a former Australian Prime Minister) and she said it was the best year of their lives because it had been so intimate. I am not sure that my husband will be so vulnerable in the last year of his life if it is to take time away from the task of staying longer. I am not sure he sees the value in that sort of approach, and I am not expecting it.

Rather, right now, it's an accompanying kind of task, and in many ways, my role is to provide comfort and support for him to do what he thinks he should do.

We both are not inclined to share distress or worry with our children, but my eldest son was in town last week and it was impossible to completely hide my state of mind from him. Goodbyes are never easy and he saw my tears as we said goodbye. It rattled him and he has been checking in on me as much as he can in his busy life. I noticed him say in one telephone call, 'It will be better when...' and of course that's not a bad thing to say. It was a rough day when I saw him, no doubt about it, a sort of rock bottom from which I have risen.

 I remember once much earlier this year say to a confidante that I felt "stuck". I don't feel stuck any more. I feel like I am truly living the days as best I can, not expecting too much of myself and at the same time not giving up or giving in.

My youngest son is here until he finishes his Masters degree in Counselling. He chats with me about the material in his course and it's the material on Attachment Theory I find so fascinating. There's no question I have not always been securely attached, nor my husband, but I like to read that this attachment is flexible. It can get better.

I'd love to sink into the arms of someone - anyone - who was willing to be the comforter. It's not easy to be the source of strength for others, to be the one 'all right', 'fine'. There's the temptation to fall apart and wait for someone to come along, perhaps, to save me. Since I doubt that could or would happen, I find myself a little avoidant, for sure. I am soaking in my own company. At the same time, there is a voice whispering in my ear a great deal, 'You will be okay. I am here with you.' I am not sure who exactly is whispering, but I appreciate her company.